Cancer has touched our family. In April of 2016 (while we were living in South Africa) Anne was diagnosed with an advanced form of a rare kind of cancer, called Neuroendocrine Tumour (NET) cancer (sometimes also called Carcinoid cancer).
We stayed in South Africa for a month of tests, and in May we travelled to the USA to seek treatment at Penn Medicine, in Coleman’s hometown of Philadelphia. There are only a handful of specialized NET treatment centres in the world, and at Penn Anne can receive the highly specialized care she needs. Anne underwent surgery on July 18, and is still recovering from complications. We’ve put together this page to give you more information about this kind of cancer, what we are facing and treatment plans.
This guide from Cancer.ca is a useful place to start for some basic information about this rare form of cancer.
This brochure has some good information about supporting patients with an advanced form of the disease, like Anne.
We are receiving treatment at the University of Pennsylvania, through the Abramson Cancer Centre’s NET program.
The Neuroendocrine Cancer Awareness Network (NCAN) is an awareness and patient advocacy no-profit dedicated to helping improve the lives of NET patients.
Did you know? Coleman had cancer, stage 3 Hodgkin’s lymphoma, and has been cancer free for more than six years. His cancer blog, detailing his journey from diagnosis to remission can be found here.
The Carcinoid Cancer Foundation is a research non profit in the USA with lots of information.
CNETS Canada is a Canadian research/patient advocacy group for this kind of cancer.
Novartis Oncology, a division of the pharmaceutical company, has a site on NET cancer called The Net Alliance.
Ipsen Pharma has a website for the long-term drug therapy Anne is taking.